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Centre Publications

Experience is central and connections matter: A Leximancer analysis of the research priorities of people with lived experience of mental health issues in Australia

Michelle Banfield et al.

Lost in translation: a narrative review and synthesis of the published international literature on mental health research and translation priorities (2011–2023)

Victoria J. Palmer et al.

A co-design living labs philosophy of practice for end-to-end research design to translation with people with lived-experience of mental ill-health and carer/family and kinship groups

Victoria J. Palmer et al.

Media and Commentary

Lived Experience Should Be Centered in Future Mental Health Research

Media release on the article: Experience is central and connections matter: A Leximancer analysis of the research priorities of people with lived experience of mental health issues in Australia
June 2024
Accompanying artwork by Julia Palfreyman
Screenshot 2024-06-11 at 1.15.39 PM

Omission of mental health lived-experience research in implementation research commission

The Lancet Psychiatry Correspondence
June 2024
Victoria Palmer and Michelle Banfield

Existing datasets further isolate underserved populations

Actions to the Call
28 MARCH 2024
By Harriet Grayson
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The ALIVE National Centre for Mental Health Research Translation

Victoria J. Palmer et al.

Electronic Publications

Lost in Translation - A Zine for Mental Health Research Translation

Previously known as the ALIVE National Community Update, we have undergone a massive redesign for spring with the aim of bringing you the latest in mental health research in what we hope is an engaging and dynamic format. Each quarter we will release this zine with feature articles about key translational activities in the sector.

Q4 - Mar 2024

The ALIVE National Phase 2 Consensus Statement The Intermediary Horizon 2024: Pathways of Families and Implementation Actions

Our Phase 2 Consensus Statement brings voices of parents living with mental ill-health, partners and young adults (16+), and family members together to share priorities and action areas. We thank the Prato International Research Collaborative for partnering on this survey.

 

Screenshot 2024-05-27 at 8.54.26 PM

The ALIVE National Phase 1 Consensus Statement The Short Horizon 2023 Implementation Actions

Our Phase 1 Consensus Statement was co-designed with 115 people with lived-experience of mental ill-health and carer/family and kinship group members over 2022.  These actions will inform further translation goals and targets for our national roadmap.

 

This image describes the emotion mapping processes for establishment of consensus in how people feel about different priority areas.

Affiliated Centre Publications

Understanding experiences, unmet needs and priorities related to post-stroke aphasia care: stage one of an experience-based co-design project

Anemaat, L. N., et al. (2024). “Understanding experiences, unmet needs and priorities related to post-stroke aphasia care: stage one of an experience-based co-design project.” BMJ Open 14(5): e081680. 

Associations between child maltreatment and hospital admissions for alcohol and other substance use-related disorders up to 40 years of age: Results from the Childhood Adversity and Lifetime Morbidity study

Bull et al (2024) Associations between child maltreatment and hospital admissions for alcohol and other substance use-related disorders up to 40 years of age: Results from the Childhood Adversity and Lifetime Morbidity study Addiction 

Socioeconomic inequalities in child and adolescent mental health in Australia: the role of parenting style and parents’ relationships

Gautam, N., et al. (2024). “Socioeconomic inequalities in child and adolescent mental health in Australia: the role of parenting style and parents’ relationships.” Child and Adolescent Psychiatry and Mental Health 18(1): 28. 

Socioeconomic mental health disparities and income mobility in Australia: A longitudinal factor decomposition analysis

Hashmi, R., et al. (2024). “Socioeconomic mental health disparities and income mobility in Australia: A longitudinal factor decomposition analysis.” Economic Analysis and Policy 82: 290-302 

Specialist treatment for persistent depression in secondary care: Sustained effects from a multicentre UK study at 24 and 36 months

Nixon, N., et al. (2024). “Specialist treatment for persistent depression in secondary care: Sustained effects from a multicentre UK study at 24 and 36 months.” Journal of Affective Disorders 345: 70-77. 

Acute ingestion of Ibuprofen does not influence the release of IL-6 or improve self-paced exercise in the heat despite altering cortical activity

Vargas, N. T., et al. (2024). “Acute ingestion of Ibuprofen does not influence the release of IL-6 or improve self-paced exercise in the heat despite altering cortical activity.” European Journal of Applied Physiology. 

Consumers Lived Experiences and Satisfaction with Sub-Acute Mental Health Residential Services

Waks, S., et al. (2024). “Consumers lived experiences and satisfaction with sub-acute mental health residential services.” Social Psychiatry and Psychiatric Epidemiology. 

‘Keeping it real’: A qualitative exploration of preferences of people with lived experience for participation and active involvement in mental health research in Australia

Dray, J., et al. (2024). “‘Keeping it real’: A qualitative exploration of preferences of people with lived experience for participation and active involvement in mental health research in Australia.” Health Expectations 27(1): e13934. 

Designing a Web-Based Navigation Tool to Support Access to Youth Mental Health Services: Qualitative Study

Calear, A. L., et al. (2024). “Designing a Web-Based Navigation Tool to Support Access to Youth Mental Health Services: Qualitative Study.” JMIR Formative Research 8(1). 

A mixed-methods evaluation of the impacts of an online Carer wellbeing and connection program

Coe, A., et al. (2023). “A mixed-methods evaluation of the impacts of an online Carer wellbeing and connection program.” PEC Innovation 3. 

Outdoor mental healthcare: What, who, why and where to?

Neil, A. L., et al. (2023). “Outdoor mental healthcare: What, who, why and where to?” Australasian Psychiatry 31(6): 798-805. 

Exploring the relationship between baseline health-related quality of life (AQoL-4D utility values) and mortality during long-term follow-up for people living with a psychotic disorder

Neil, A. L., et al. (2023). “Exploring the relationship between baseline health-related quality of life (AQoL-4D utility values) and mortality during long-term follow-up for people living with a psychotic disorder.” Schizophrenia Research 262: 121-129. 

Anxiety management in Australian general practice: an analysis of encounters from 2006 – 2016

Parker, E. L., et al. (2023). “Anxiety management in Australian general practice: an analysis of encounters from 2006 – 2016.” BMC Primary Care 24(1). 

At arm's length: A qualitative study of suicide prevention barriers among those experienced with suicide loss

Fitzpatrick, S. J., Gallagher, K., Banfield, M., Gulliver, A., Calear, A. L., Conroy, S., & Batterham, P. J. (2023). At arm’s length: A qualitative study of suicide prevention barriers among those experienced with suicide loss. SSM – Qualitative Research in Health, 4, 100318. 

A scoping review of cardiovascular risk factor screening rates in general or family practice attendees living with severe mental ill-health

Xue, Y., et al. (2023). “A scoping review of cardiovascular risk factor screening rates in general or family practice attendees living with severe mental ill-health.” Schizophr Res 261: 47-59. 

Decolonizing First Peoples child welfare

Blackstock, C., et al. (2023). Decolonizing First Peoples child welfare. The Routledge International Handbook on Decolonizing Justice: 313-323. 

Bridging the evidence gap: A review and research protocol for outdoor mental health therapies for young Australians

Flies, E. J., et al. (2023). “Bridging the evidence gap: A review and research protocol for outdoor mental health therapies for young Australians.” Journal of Outdoor and Environmental Education. 

Virtual emergency care in Victoria: Stakeholder perspectives of strengths, weaknesses, and barriers and facilitators of service scale-up

Pu, D., et al. (2023). “Virtual emergency care in Victoria: Stakeholder perspectives of strengths, weaknesses, and barriers and facilitators of service scale-up.” Australasian Emergency Care. 

Out-of-pocket payments: impacts on healthcare decision-making and system and individual level measures to minimise the burden

Neil, A. L. (2023). “Out-of-pocket payments: impacts on healthcare decision-making and system and individual level measures to minimise the burden.” Australian Health Review. 

Physical Activity for Cognitive Health: A Model for Intervention Design for People Experiencing Cognitive Concerns and Symptoms of Depression or Anxiety

Curran, E., et al. (2023). “Physical Activity for Cognitive Health: A Model for Intervention Design for People Experiencing Cognitive Concerns and Symptoms of Depression or Anxiety.” Journal of Alzheimer’s Disease 94(2): 781-799. 

First Nations Children and Families and Permanency Planning Reform: The Evidence Counts

Hermeston, W. (2023). “First Nations Children and Families and Permanency Planning Reform: The Evidence Counts.” Australian Social Work 76(3): 358-370. 

Design Features of Learning Apps for Mobile Gamification

Tjung, C., et al. (2022). “Design Features of Learning Apps for Mobile Gamification: Graphic Designers Use Co-design to Prompt Young Children to Speak.” Visible Language 56(3): 32-57. 

Economic evaluation of a Decision Support Tool to guide intensity of mental health care in general practice: the Link-me pragmatic randomised controlled trial

Chatterton, M. L., et al. (2022). “Economic evaluation of a Decision Support Tool to guide intensity of mental health care in general practice: the Link-me pragmatic randomised controlled trial.” BMC Prim Care 23(1): 236. 

Interventions to support the mental health and well-being of front-line healthcare workers in hospitals during pandemics: an evidence review and synthesis

Robins-Browne, K., et al. (2022). “Interventions to support the mental health and well-being of front-line healthcare workers in hospitals during pandemics: an evidence review and synthesis.” BMJ Open 12(11): e061317. 

Integrative genomics reveals pathogenic mediator of valproate-induced neurodevelopmental disability

Feleke, R., et al. (2022). “Integrative genomics reveals pathogenic mediator of valproate-induced neurodevelopmental disability.” Brain 145(11): 3832-3842. 

Patient reported self-help strategies and the perceived benefits for managing sub-threshold depressive symptoms: A nested qualitative study of Australian primary care attendees

Taylor, A. K., et al. (2022). “Patient reported self-help strategies and the perceived benefits for managing sub-threshold depressive symptoms: A nested qualitative study of Australian primary care attendees.” Health Soc Care Community 30(5): e2097-e2108 

Dementia Risk Reduction in Primary Care: A Scoping Review of Clinical Guidelines Using a Behavioral Specificity Framework

Godbee, K., et al. (2022). “Dementia Risk Reduction in Primary Care: A Scoping Review of Clinical Guidelines Using a Behavioral Specificity Framework.” J Alzheimers Dis 89(3): 789-802. 

The CORE study—An adapted mental health experience codesign intervention to improve psychosocial recovery for people with severe mental illness: A stepped wedge cluster randomized-controlled trial

Palmer, V. J., et al. (2021). “The CORE study-An adapted mental health experience codesign intervention to improve psychosocial recovery for people with severe mental illness: A stepped wedge cluster randomized-controlled trial.” Health Expect 24(6): 1948-1961. 

Using experience-based codesign to coproduce aphasia rehabilitation services: study protocol

Anemaat, L., et al. (2021). “Using experience-based codesign to coproduce aphasia rehabilitation services: Study protocol.” BMJ Open 11(11). 

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