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Peer Reviewed Centre Publications

Assessing health literacy and its impacts among people accessing unguided internet-delivered cognitive behaviour therapy for depression and anxiety: a treatment-seeking cohort study

Alana Fisher, Madelyne Bisby, Taylor Hathway, Atria Rezwan, Julie Ayre, Danielle Muscat, Nickolai Titov and Blake Dear.

Advances in Mental Health, July 2025.

Embedding lived experience in mental health research: what we need to pack (and unpack) for the future in mental health research and translation

Michelle Banfield and Victoria J Palmer.

BMJ Mental Health, June 2025

“No co-design process can ever truly cater to every single person”: Perspectives of young people in Australia on co-design for the prevention of mental health challenges

Abigail Juras, Nicola Reavley, Minahil Abbas Mehr, Shixin Wang, Thao Duyen Nguyen, Sankara Santosa, Duc-Binh Tran, Wangpeng Gui, Stephanie Dumuid, Sam Phung, Edward Satria Antony, Alison Turner, and Lakshmi Neelakantan.

Mental Health & Prevention, 2025

Capacity-building strategy for next-generation mental health research: embedding a national network infrastructure to grow mental health researcher capabilities and mental health lived-experience research leaders

Dana Jazayeri, Michelle Banfield, Caley Tapp, Caroline Tjung, Tegan Stettaford, Victoria Stewart, Giulietta Valuri, Terence Chong, Patricia Cullen, Martina McGrath, Rebecca Cooper, Amanda J Wheeler, Amanda L Neil, Steve Kisely, Jill Bennett, David Preen, Sandra Eades (AO), Lena Sanci, Emma Baker, and Victoria J Palmer.

BMJ Mental Health, 25 March 2025

Translational research in Australian mental health policy: a scoping review

Caroline Robertson, Justin J. Chapman, Vicky Stewart, Calista Castles, Victoria J. Palmer, Harry Lovelock, Kerry Hawkins, Michelle Banfield, The ALIVE National Centre for Mental Health Research Translation Investigator Group, The ALIVE National Centre Intersectoral Policy and Practice Committee, & Amanda J. Wheeler.
Australian Health Review, 14 January 2025

Danger Is a Signal, Not a State: Bigaagarri—An Indigenous Protocol for Dancing Around Threats to Wellbeing

Phillip Orcher, Victoria J. Palmer, & Tyson Yunkaporta.

A narrative review of community wellbeing programmes and the reported outcomes for young carers

Jennifer Bibb, Samuel McMaster, & Victoria J. Palmer.

Experience is central and connections matter: A Leximancer analysis of the research priorities of people with lived experience of mental health issues in Australia

Michelle Banfield et al.

Omission of mental health lived-experience research in implementation research commission

The Lancet Psychiatry Correspondence
June 2024
Victoria Palmer and Michelle Banfield

Lost in translation: a narrative review and synthesis of the published international literature on mental health research and translation priorities (2011–2023)

Victoria J. Palmer et al.

A co-design living labs philosophy of practice for end-to-end research design to translation with people with lived-experience of mental ill-health and carer/family and kinship groups

Victoria J. Palmer et al.

Media

Measuring what matters in mental health

Michelle Banfield

Lived Experience Should Be Centered in Future Mental Health Research

Media release on the article: Experience is central and connections matter: A Leximancer analysis of the research priorities of people with lived experience of mental health issues in Australia
June 2024
Accompanying artwork by Julia Palfreyman
Screenshot 2024-06-11 at 1.15.39 PM

Existing datasets further isolate underserved populations

Actions to the Call
28 March 2024
By Harriet Grayson
Image

Lived-experience researchers in the health and medical workforce

INSPIRE Magazine, research Australia
24 July 2023
Michelle Banfield and Victoria Palmer

The ALIVE National Centre for Mental Health Research Translation

Victoria J. Palmer et al.

Other Centre Publications

Lost in Translation - A Zine for Mental Health Research Translation

Previously known as the ALIVE National Community Update, we have undergone a massive redesign for spring with the aim of bringing you the latest in mental health research in what we hope is an engaging and dynamic format. Each quarter we will release this zine with feature articles about key translational activities in the sector.

Q4 - Mar 2024

The ALIVE National Phase 2 Consensus Statement The Intermediary Horizon 2024: Pathways of Families and Implementation Actions

Our Phase 2 Consensus Statement brings voices of parents living with mental ill-health, partners and young adults (16+), and family members together to share priorities and action areas. We thank the Prato International Research Collaborative for partnering on this survey.

 

Screenshot 2024-05-27 at 8.54.26 PM

The ALIVE National Phase 1 Consensus Statement The Short Horizon 2023 Implementation Actions

Our Phase 1 Consensus Statement was co-designed with 115 people with lived-experience of mental ill-health and carer/family and kinship group members over 2022.  These actions will inform further translation goals and targets for our national roadmap.

 

This image describes the emotion mapping processes for establishment of consensus in how people feel about different priority areas.

Peer Reviewed Affiliated Publications

Impacts of adolescent participation in a mental health education, leadership, and advocacy program (the Live4Life Crew) on outcomes after leaving secondary school in Victoria, Australia: A qualitative study

Lakshmi Neelakantan, Nina Logan, Monika Raniti, Nicola Reavley.

SSM – Mental Health, June 2025

Variations between, and within, jurisdictions in the use of community treatment orders and other compulsory community treatment: study of 402 060 people across four Australian states

Kisely, S., Bull, C., Zirnsak, T., Edan, V., Gould, M., Lawn, S., … & Brophy, L. (2025). Variations between, and within, jurisdictions in the use of community treatment orders and other compulsory community treatment: study of 402 060 people across four Australian states. BJPsych open11(2), e57.

The impact of COVID-19 on participation in Australia’s National Bowel Cancer Screening Program by people with severe mental illness: A national data linkage study

Bull, C., Spilsbury, K., Lawrence, D., Saxby, K. I., & Kisely, S. (2025). The impact of COVID-19 on participation in Australia’s National Bowel Cancer Screening Program by people with severe mental illness: A national data linkage study. Australian & New Zealand Journal of Psychiatry, 00048674251336034.

Do internalising or externalising behaviours in adolescence mediate the child maltreatment-alcohol substance use relationship?

Trott, M., Bull, C., Najman, J. M., Siskind, D., Arnautovska, U., & Kisely, S. (2025). Do internalising or externalising behaviours in adolescence mediate the child maltreatment‐alcohol substance use relationship?. Addiction120(7), 1413-1421.

Associations between self-reported and agency-reported child maltreatment and mental illness in later life: Results from the CALM study

Trott, M., Bull, C., Najman, J. M., & Kisely, S. (2025). Associations between self-reported and agency-reported child maltreatment and mental illness in later life: Results from the CALM study. Child Abuse & Neglect163, 107433.

Addressing the challenges of child maltreatment measurement: Examining the types of data we use and how we use them

Bull, C., Trott, M., & Kisely, S. (2025). Addressing the challenges of child maltreatment measurement: Examining the types of data we use and how we use them. Australian & New Zealand Journal of Psychiatry59(4), 301-303.

Rates of colorectal cancer diagnosis and mortality in people with severe mental illness: results from Australia’s National Bowel Cancer Screening Programme

Kisely, S., Spilsbury, K., Bull, C., Jordan, S., Kendall, B. J., Siskind, D., … & Lawrence, D. (2024). Rates of colorectal cancer diagnosis and mortality in people with severe mental illness: results from Australia’s National Bowel Cancer Screening Programme. Epidemiology and Psychiatric Sciences33, e79.

Latest findings highlight the continuing uncertainty over the utility of compulsory psychiatric treatment in the community

Kisely, S., Zirnsak, T., Maylea, C., Bull, C., & Brophy, L. (2024). Latest findings highlight the continuing uncertainty over the utility of compulsory psychiatric treatment in the community. BJPsych Open10(5), e133.

The benefits and harms of community treatment orders for people diagnosed with psychiatric illnesses: A rapid umbrella review of systematic reviews and meta-analyses

Kisely, S., Zirnsak, T., Corderoy, A., Ryan, C. J., & Brophy, L. (2024). The benefits and harms of community treatment orders for people diagnosed with psychiatric illnesses: A rapid umbrella review of systematic reviews and meta-analyses. Australian & New Zealand Journal of Psychiatry58(7), 555-570.

Participation in the National Bowel Cancer Screening Program by people with severe mental illness, Australia, 2006–2019: a national data linkage study

Kisely, S., Seth, R., Jordan, S. J., Kendall, B., Siskind, D. J., Sara, G., … & Lawrence, D. M. (2024). Participation in the National Bowel Cancer Screening Program by people with severe mental illness, Australia, 2006–2019: a national data linkage study. Medical Journal of Australia221(11), 617-622.

Risk factors associated with child maltreatment in the second generation of a prospective longitudinal Australian birth cohort: A MUSP study

Bull, C., Trott, M., Najman, J. M., Reid, N., & Kisely, S. (2024). Risk factors associated with child maltreatment in the second generation of a prospective longitudinal Australian birth cohort: A MUSP study. Social Science & Medicine362, 117402.

Emergency department presentations and admission for common mental disorders following agency-notified child maltreatment at 40-year follow-up: results from the Childhood Adversity and Lifetime Morbidity study

Kisely, S., Bull, C., Trott, M., Arnautovska, U., Siskind, D., Warren, N., & Najman, J. M. (2024). Emergency department presentations and admission for common mental disorders following agency-notified child maltreatment at 40-year follow-up: results from the Childhood Adversity and Lifetime Morbidity study. BJPsych Open10(6), e220.

Hospital admissions and community health service contacts for mental illness following self-reported child maltreatment: Results from the Childhood Adversity and Lifetime Morbidity (CALM) study

Trott, M., Bull, C., Najman, J. M., Arnautovska, U., Siskind, D., Warren, N., & Kisely, S. (2024). Hospital admissions and community health service contacts for mental illness following self-reported child maltreatment: Results from the Childhood Adversity and Lifetime Morbidity (CALM) study. Child Abuse & Neglect154, 106912.

Associations between child maltreatment and hospital admissions for alcohol and other substance use-related disorders up to 40 years of age: Results from the Childhood Adversity and Lifetime Morbidity study

Bull, C., Trott, M., Najman, J. M., Arnautovska, U., Siskind, D., Warren, N., & Kisely, S. (2024). Associations between child maltreatment and hospital admissions for alcohol and other substance use‐related disorders up to 40 years of age: Results from the Childhood Adversity and Lifetime Morbidity study. Addiction119(7), 1253-1263.

Emergency Department Presentations for Injuries Following Agency-Notified Child Maltreatment: Results From the Childhood Adversity and Lifetime Morbidity (CALM) Study

Trott, M., Bull, C., Arnautovska, U., Siskind, D., Warren, N., Najman, J. M., & Kisely, S. (2024). Emergency department presentations for injuries following agency-notified child maltreatment: results from the childhood adversity and lifetime morbidity (CALM) study. Child maltreatment, 10775595241264009.

Admissions for psychosis following agency-notified child maltreatment at 40-year-follow-up: Results from the Childhood Adversity and Lifetime Morbidity (CALM) cohort

Kisely, S., Arnautovska, U., Siskind, D., Warren, N., & Najman, J. M. (2024). Admissions for psychosis following agency-notified child maltreatment at 40-year-follow-up: results from the childhood adversity and lifetime morbidity (CALM) cohort. Schizophrenia Research267, 247-253.

Emergency department presentations for deliberate self-harm and suicidal ideation in 25–39 year olds following agency-notified child maltreatment: results from the Childhood Adversity and Lifetime Morbidity (CALM) study

Kisely, S., Bull, C., Trott, M., Arnautovska, U., Siskind, D., Warren, N., & Najman, J. M. (2024). Emergency department presentations for deliberate self-harm and suicidal ideation in 25–39 year olds following agency-notified child maltreatment: results from the Childhood Adversity and Lifetime Morbidity (CALM) study. Epidemiology and psychiatric sciences33, e18.

Understanding experiences, unmet needs and priorities related to post-stroke aphasia care: stage one of an experience-based co-design project

Anemaat, L. N., et al. (2024). “Understanding experiences, unmet needs and priorities related to post-stroke aphasia care: stage one of an experience-based co-design project.” BMJ Open 14(5): e081680. 

Associations between child maltreatment and hospital admissions for alcohol and other substance use-related disorders up to 40 years of age: Results from the Childhood Adversity and Lifetime Morbidity study

Bull et al (2024) Associations between child maltreatment and hospital admissions for alcohol and other substance use-related disorders up to 40 years of age: Results from the Childhood Adversity and Lifetime Morbidity study Addiction 

Socioeconomic inequalities in child and adolescent mental health in Australia: the role of parenting style and parents’ relationships

Gautam, N., et al. (2024). “Socioeconomic inequalities in child and adolescent mental health in Australia: the role of parenting style and parents’ relationships.” Child and Adolescent Psychiatry and Mental Health 18(1): 28. 

Socioeconomic mental health disparities and income mobility in Australia: A longitudinal factor decomposition analysis

Hashmi, R., et al. (2024). “Socioeconomic mental health disparities and income mobility in Australia: A longitudinal factor decomposition analysis.” Economic Analysis and Policy 82: 290-302 

Specialist treatment for persistent depression in secondary care: Sustained effects from a multicentre UK study at 24 and 36 months

Nixon, N., et al. (2024). “Specialist treatment for persistent depression in secondary care: Sustained effects from a multicentre UK study at 24 and 36 months.” Journal of Affective Disorders 345: 70-77. 

Acute ingestion of Ibuprofen does not influence the release of IL-6 or improve self-paced exercise in the heat despite altering cortical activity

Vargas, N. T., et al. (2024). “Acute ingestion of Ibuprofen does not influence the release of IL-6 or improve self-paced exercise in the heat despite altering cortical activity.” European Journal of Applied Physiology. 

Consumers Lived Experiences and Satisfaction with Sub-Acute Mental Health Residential Services

Waks, S., et al. (2024). “Consumers lived experiences and satisfaction with sub-acute mental health residential services.” Social Psychiatry and Psychiatric Epidemiology. 

‘Keeping it real’: A qualitative exploration of preferences of people with lived experience for participation and active involvement in mental health research in Australia

Dray, J., et al. (2024). “‘Keeping it real’: A qualitative exploration of preferences of people with lived experience for participation and active involvement in mental health research in Australia.” Health Expectations 27(1): e13934. 

Designing a Web-Based Navigation Tool to Support Access to Youth Mental Health Services: Qualitative Study

Calear, A. L., et al. (2024). “Designing a Web-Based Navigation Tool to Support Access to Youth Mental Health Services: Qualitative Study.” JMIR Formative Research 8(1). 

A 40-year study of child maltreatment over the early life course predicting psychiatric morbidity, using linked birth cohort and administrative health data: protocol for the Childhood Adversity and Lifetime Morbidity (CALM) study

Kisely, S., Leske, S., Arnautovska, U., Siskind, D., Warren, N., Northwood, K., … & Najman, J. M. (2023). A 40-year study of child maltreatment over the early life course predicting psychiatric morbidity, using linked birth cohort and administrative health data: Protocol for the Childhood Adversity and Lifetime Morbidity (CALM) study. BJPsych open9(2), e50.

A mixed-methods evaluation of the impacts of an online Carer wellbeing and connection program

Coe, A., et al. (2023). “A mixed-methods evaluation of the impacts of an online Carer wellbeing and connection program.” PEC Innovation 3. 

Outdoor mental healthcare: What, who, why and where to?

Neil, A. L., et al. (2023). “Outdoor mental healthcare: What, who, why and where to?” Australasian Psychiatry 31(6): 798-805. 

Exploring the relationship between baseline health-related quality of life (AQoL-4D utility values) and mortality during long-term follow-up for people living with a psychotic disorder

Neil, A. L., et al. (2023). “Exploring the relationship between baseline health-related quality of life (AQoL-4D utility values) and mortality during long-term follow-up for people living with a psychotic disorder.” Schizophrenia Research 262: 121-129. 

Anxiety management in Australian general practice: an analysis of encounters from 2006 – 2016

Parker, E. L., et al. (2023). “Anxiety management in Australian general practice: an analysis of encounters from 2006 – 2016.” BMC Primary Care 24(1). 

At arm's length: A qualitative study of suicide prevention barriers among those experienced with suicide loss

Fitzpatrick, S. J., Gallagher, K., Banfield, M., Gulliver, A., Calear, A. L., Conroy, S., & Batterham, P. J. (2023). At arm’s length: A qualitative study of suicide prevention barriers among those experienced with suicide loss. SSM – Qualitative Research in Health, 4, 100318. 

A scoping review of cardiovascular risk factor screening rates in general or family practice attendees living with severe mental ill-health

Xue, Y., et al. (2023). “A scoping review of cardiovascular risk factor screening rates in general or family practice attendees living with severe mental ill-health.” Schizophr Res 261: 47-59. 

Decolonizing First Peoples child welfare

Blackstock, C., et al. (2023). Decolonizing First Peoples child welfare. The Routledge International Handbook on Decolonizing Justice: 313-323. 

Bridging the evidence gap: A review and research protocol for outdoor mental health therapies for young Australians

Flies, E. J., et al. (2023). “Bridging the evidence gap: A review and research protocol for outdoor mental health therapies for young Australians.” Journal of Outdoor and Environmental Education. 

Virtual emergency care in Victoria: Stakeholder perspectives of strengths, weaknesses, and barriers and facilitators of service scale-up

Pu, D., et al. (2023). “Virtual emergency care in Victoria: Stakeholder perspectives of strengths, weaknesses, and barriers and facilitators of service scale-up.” Australasian Emergency Care. 

Out-of-pocket payments: impacts on healthcare decision-making and system and individual level measures to minimise the burden

Neil, A. L. (2023). “Out-of-pocket payments: impacts on healthcare decision-making and system and individual level measures to minimise the burden.” Australian Health Review. 

Physical Activity for Cognitive Health: A Model for Intervention Design for People Experiencing Cognitive Concerns and Symptoms of Depression or Anxiety

Curran, E., et al. (2023). “Physical Activity for Cognitive Health: A Model for Intervention Design for People Experiencing Cognitive Concerns and Symptoms of Depression or Anxiety.” Journal of Alzheimer’s Disease 94(2): 781-799. 

First Nations Children and Families and Permanency Planning Reform: The Evidence Counts

Hermeston, W. (2023). “First Nations Children and Families and Permanency Planning Reform: The Evidence Counts.” Australian Social Work 76(3): 358-370. 

Design Features of Learning Apps for Mobile Gamification

Tjung, C., et al. (2022). “Design Features of Learning Apps for Mobile Gamification: Graphic Designers Use Co-design to Prompt Young Children to Speak.” Visible Language 56(3): 32-57. 

Economic evaluation of a Decision Support Tool to guide intensity of mental health care in general practice: the Link-me pragmatic randomised controlled trial

Chatterton, M. L., et al. (2022). “Economic evaluation of a Decision Support Tool to guide intensity of mental health care in general practice: the Link-me pragmatic randomised controlled trial.” BMC Prim Care 23(1): 236. 

Interventions to support the mental health and well-being of front-line healthcare workers in hospitals during pandemics: an evidence review and synthesis

Robins-Browne, K., et al. (2022). “Interventions to support the mental health and well-being of front-line healthcare workers in hospitals during pandemics: an evidence review and synthesis.” BMJ Open 12(11): e061317. 

Integrative genomics reveals pathogenic mediator of valproate-induced neurodevelopmental disability

Feleke, R., et al. (2022). “Integrative genomics reveals pathogenic mediator of valproate-induced neurodevelopmental disability.” Brain 145(11): 3832-3842. 

Patient reported self-help strategies and the perceived benefits for managing sub-threshold depressive symptoms: A nested qualitative study of Australian primary care attendees

Taylor, A. K., et al. (2022). “Patient reported self-help strategies and the perceived benefits for managing sub-threshold depressive symptoms: A nested qualitative study of Australian primary care attendees.” Health Soc Care Community 30(5): e2097-e2108 

Dementia Risk Reduction in Primary Care: A Scoping Review of Clinical Guidelines Using a Behavioral Specificity Framework

Godbee, K., et al. (2022). “Dementia Risk Reduction in Primary Care: A Scoping Review of Clinical Guidelines Using a Behavioral Specificity Framework.” J Alzheimers Dis 89(3): 789-802. 

The CORE study—An adapted mental health experience codesign intervention to improve psychosocial recovery for people with severe mental illness: A stepped wedge cluster randomized-controlled trial

Palmer, V. J., et al. (2021). “The CORE study-An adapted mental health experience codesign intervention to improve psychosocial recovery for people with severe mental illness: A stepped wedge cluster randomized-controlled trial.” Health Expect 24(6): 1948-1961. 

Using experience-based codesign to coproduce aphasia rehabilitation services: study protocol

Anemaat, L., et al. (2021). “Using experience-based codesign to coproduce aphasia rehabilitation services: Study protocol.” BMJ Open 11(11). 

‘This is doin’ My Head in'

Calear, A. L., Morse, A. R., & Banfield, M. (2024). ‘This is doin’My Head in’: The Ethics of Psychological Research. In The Routledge Handbook of Human Research Ethics and Integrity in Australia (pp. 238-250). Routledge.

Starting conversations about mental health and wellbeing in Australian culturally and linguistically diverse communities

Morse AR, Smith DG, Clifford R, Shrimpton B & Banfield M. (2024) Starting conversations about mental health and wellbeing in Australian Culturally and Linguistically Diverse Communities. Health Promotion International, 39: daae099

Designing a Web-Based Navigation Tool to Support Access to Youth Mental Health Services: Qualitative Study

Calear AL, Batterham PJ, McCallum S, Banfield M, Moore E, Johnson N & Morse AR. (2024). Designing a web-based navigation tool to support access to youth mental health services: qualitative study. JMIR Formative Research, 8:e48945

Co‐ideation and co‐design in co‐creation research: Reflections from the 'Co‐Creating Safe Spaces' project

Fitzpatrick SJ, Lamb H, Stewart E, Gulliver A, Morse AR, Giugni M, Banfield M. (2023) Co-ideation and co-design in co-creation research: Reflections from the ‘Co-Creating Safe Spaces project’. Health Expectations, 26(4):1738-1745 https://doi.org/10.1111/hex.13785

The role of school connectedness in the prevention of youth depression and anxiety: a systematic review with youth consultation.

Raniti, M., Rakesh, D., Patton, G. C., & Sawyer, S. M. (2022). The role of school connectedness in the prevention of youth depression and anxiety: a systematic review with youth consultation. BMC public health, 22(1), 2152.

Health-promoting schools: An opportunity to strengthen responses to homelessness and health disparities in children and adolescents.

Heerde, J., Raniti, M., & Sawyer, S. (2023). Health-promoting schools: An opportunity to strengthen responses to homelessness and health disparities in children and adolescents. Parity, 36(2), 37-40.

Colorectal cancer treatment in people with severe mental illness: a systematic review and meta-analysis

Protani, M. M., Alotiby, M. K. N., Seth, R., Lawrence, D., Jordan, S. J., Logan, H., … & Kisely, S. (2022). Colorectal cancer treatment in people with severe mental illness: a systematic review and meta-analysis. Epidemiology and Psychiatric Sciences31, e82.

Colorectal cancer Outcomes in people with Severe Mental Illness Cohort (COSMIC): a protocol for an Australian retrospective cohort using linked administrative data

Protani, M. M., Jordan, S. J., Kendall, B. J., Siskind, D., Lawrence, D., Sara, G., … & Kisely, S. (2021). Colorectal cancer Outcomes in people with Severe Mental Illness Cohort (COSMIC): a protocol for an Australian retrospective cohort using linked administrative data. BMJ open11(6), e044737.

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