The ALIVE National Centre Dataset of Mental Health Research Priorities (2022-current) by people with lived-experience of mental ill-health and carer, family and kinship group members*
This database of priorities is shared by people with lived-experience for the ALIVE National co-partnered annual lived-experience priorities surveys.
In 2022, the ANU-ALIVE National survey focused on people who identified as consumers, consumer and carer, carers and was led by Prof Michelle Banfield. You can now read more about the 2022 priorities survey in this paper on Experience is central and connections matter: A Leximancer analysis of the research priorities of people with lived experience of mental health issues in Australia.
The 2023 survey was conducted by MONASH-ALIVE through the PRATO consortium and was led by Prof Darryl Maybery.
The 2024 ALIVE Lived Experience research priority-setting study focuses on two parts. The first part is a ‘choose your own adventure’ study through survey, emotion mapping, photo interview, and crowdsourcing for young people aged 16-25 years old who identified as consumers, consumer and carer, and carers. The second part is the replenishment study for the views of carer, family or kinship group members, and gives opportunity anyone supporting someone with mental ill-health to take part.
Please contact the alive-hub@unimelb.edu.au for full citation details for when these priorities are referred to in your research grants, papers, policy submissions, for advocacy or for research activities overall.
